I am back on the amitiptyline at my request. Although my BP had dropped while I was off it and on the benzofluo-whatsitname it didn’t drop by much and I was finding that the pain levels were going up so much that the BP was going up with them, particularly by late afternoon.
Monthly Archives: September 2010
At the unearthly time of 4:15 am Al and the three biggies got up and went to church to catch a coach to Cofton Park where the Holy Father was going to say Mass and beatify the local lad John Henry Cardinal Newman.
I stayed home with the three smalls and friends came over to watch the whole event of telly. We watched EWTN rather than suffer the BBC coverage. I hear the commentary via the BBC was pretty awful with the commentator even talking about silence through the time of silence LOL. Mr Arroyo has more style methinks.
It was pretty cold and wet when they first arrived but the rain stopped and the sun came out as soon as Papa Beni arrived. The four intrepid Mass goers had a wonderful time among the other 80,000 or so congregation.
Sadly they didn’t get much in the way of photos, but it was Mass, so I guess that’s fair enough. Everyone was really joyful to see him and have the father here who spoke so clearly about what we need.
I watched the second part of Gareth Malone’s Extraordinary School for Boys t’other night. It was very interesting, and I found it quite disturbing in places. Then I saw Danae’s post on Frank Fields and I am wondering what to make of it all. More comments have been added to the bbc blog on Gareth’s endevour some raising points I was going to talk about here. One dad in particular picked up on something I noticed. He is a dad of one of the boys in the programme and didn’t turn up the the “meeting” because it was held at 3:30pm on a week day. As he pointed out, how many dads could possibly be around at that time of day? Even Gareth muttered something about the time of it in the programme.
Making marmalade the fibro way goes like this:
So. First, take no drugs – you will be using the hob. Brain fog makes that risky enough without adding drugs to the situation.
Weigh out 3lbs of oranges and a grapefruit.
Put them into a cauldron or large preserving pan and pour in 5pts of water. Light the hob and check you really did light it and that you really did light the right ring.
Leave the oranges to simmer.
Forget all about them until your daughter or other person who happens to walk into the kitchen asks if you really want them to boil dry. Realise that you were making marmalade and return to kitchen. Add five more pints and remember to cover the pot with foil so it doesn’t boil dry. Simmer. Have all the children constantly remind you that you have the hob on.
Turn hob off and leave to cool.
The oranges and grapefruit should be nice and soft. Don’t peel them- that would hurt like…Anyway cut them into quaters and feed through a processor blade to slice thinly. You will find that this isn’t completely “professional” looking so take some of the really big bits of skin and slice with a knife. This is easy and not too painful.
Add all the stuff back into the water and pour in just less than 3lbs of pectin sugar.
Don’t take drugs. Put the hob on and let this boil. You really must not walk away, because you just KNOW you will forget and hot sugar is jolly dangerous. So stay there. Stir it a few times. After about 10 minutes possibly a little longer test the skin for wrinkles or do the cool saucer test where you put a teaspoon of the marmalade on a plate and see if it wrinkles and sticks when gently pushed. Boil longer if needed and test again. To manage pain at this point pace. Research shows that pacing does actually help.
When ready leave to cool. Take drugs.
Next day get jars for sterilisation. Light oven to sterilise jars for 8minutes at gas mark 8. Check oven some time later and wonder where the jars are. Realise you never actually put them in the oven. REMAIN CALM. Place jars in oven. Do other stuff around the place where you have written in large letters “JARS IN OVEN” and then remove them.
Spoon marmalade into jars that you have placed next to pan with plenty of kitchen roll around to take the mess you make thanks to the fact your hands don’t co-ordinate in normal marmalade making fashion.
Lid jars and go sit down with a cuppa.
Day before: prepare chicken with a bit of lemon juice and a brush of butter. Ask son to place it in the oven before he goes off to do his work. Set gas mark 7 and take drugs. Go off to do other things. Have a child say, “What’s for tea?” at a very providential moment and suddenly remember you left the chicken in the oven.
Take it out and find that thankfully it isn’t burned or even overcooked! Thank God for 7 year old boys.
Get daughter to help you prepare tea because Tramadol has left you so stoned and hardly touched the pain, that you can’t do it properly.
Place stripped chicken carcass in pot.
Next day. Add water to carcass and leave simmering on hob. This is difficult to get wrong as it smells of chicken soup so as you move around the house it reminds you it’s on. It also makes a high pitched sound which I am sure only fibro’s hear. Very annoying but very useful in brain fog.
Turn off the hob. Leave to cool.
Take drugs. You will be standing up for a while and will need it.
Use slotted spoon and remove all the carcass from the pot leaving behind the stock. Strip off the meat and throw out the bones. Using a sharp knife just chop a bit at the meat so that it’s smaller. Leave to one side.
Take either two small or one large red onion and peel and chop it. (Aren’t you glad you took those drugs now?)
In a pan heat some oil and a sprinkle of fennel seeds. Add the onion and a teaspoon of ready chopped garlic. (Pressing a garlic clove under a flat knife isn’t for us any longer is it my fellow fibros?) Add some water to sweat the onions and season. Add about four handfuls of red lentils and then more water. Simmer for a while and stir. Add it all into the stock pot. Simmer and stir until the lentils are softened.
Now, if you happen to be having a good day you can peel and chop a couple of big spuds and boil them and add them to thicken the soup. But if, you aren’t – you just can’t. It’s thinner soup but I don’t care.
Get hand held whizzer thing- what are they called? Can’t remember. Anyway, it blitzes the soup to s lovely smoothness. Add some milk or cream if you like. I added a bit of almond milk. Very nice.
Now add the chopped meat and stir. It’s done.
I put a loaf on this morning in the bread machine so there’s bread and soup.
Oh dear, just remembered it’s Friday and I’m supposed to be Catholic.
Ah well. Enjoy.
Sr Kath emailed me today. I’m afraid I haven’t seen very much at all of the Papal visit to Scotland, but she tells me it was brilliant and she hopes he gets as good a welcome here in England. I hope so too. Hospitality is such an important virtue.
Anyway she also told me there is a new tartan made specially for the event, a St Ninian Papal tartan. The Holy Father wore it as a scarf around his shoulders yesterday. She hopes she can get some.
I hope we can get some too.
Al and the three oldest are off to Cofton Park at some unearthly hour on Sunday morning. The boys are going to be at church even earlier to help with the car parking as people come to catch the coaches.
Friends are coming over to spend the day with me and the smalls as we watch the event on telly. My guess is that EWTN’s coverage will be the best so we’ll probably go with that.
I am looking forward to hearing our Holy Father speak, and I want to read it afterwards. The real words, not the mangled MSM versions. I think he will have something to teach us.