I was on the Fibro forum t’other day when someone mentioned the book Diana’s Story by Deric Longdon. I had this book recommended to me some years ago when this whole fibro thing first started up and the doctors were less than useless and so often rude and cruel. It was made into a TV film called “Wide Eyed and Legless” in the UK but changed to “The Wedding Gift” (for some reason) for the American market.
Here’s part 1. (Youtube carries the whole thing in 9 parts.)
Part 1 here is so much what happened to me it’s uncanny. I really think films like this should be compulsory viewing for medics in training (and revision for those who are already in bad habits).
Diana probably had ME/CSF which even today along with fibromyalgia gets little understanding or care from most medics. I do recommend the film, but have a hanky on hand. It’s funny and sad. It’s funny because it’s true.
I don’t think I’ve got the guts to read the book as well.