This will take just a little more than 4 minutes of your time and took the very ill maker just over four months of her life.
And it breaks my heart that so many children and teens have this truly hideous disease. But it is heart warming to see that talent isn’t dimmed.
Please spend another 5 minutes watching this vid made by a 13 year old. You may think the photos are unimportant, but if you look…you will see.
I cannot begin to tell you how horrible this disease it, or how much I utterly hate it. But there is some light and these vids shine it.