I’m sorry to write two medical posts one after the other but I had my hospital appt yesterday and thought I’d tell y’all about it.
I saw a speech cum throat- especially larynx specialist. I had been referred to her by my Respiratory Consultant who suspected that some of the asthma and other breathing problems may be Vocal Cord Dysfunction.
She took a very thorough history – I was in there for an hour – on NHS time! We went through the different breathing problems; some obviously asthma, some orthostatic, some being something else. She was interested in the problems I’m having with swallowing and eating – without immediately jumping to daft conclusions.
Then she stuck a camera up my nose and down my throat. This is just the sort of thing a good Catholic girlie can “offer up”
From this delightful experience she told me straight away that my throat was “cherry red” and otherwise a bit of a mess. So I now have a dx of Vocal Cord Dysfunction (VCD) and EERD (a form of reflux)
In her talk about how VCD works she spoke of it as a spectrum disorder. On the mild end are those who have what I suppose sounds like voice strain; teachers, soldiers and opera singers being the most common patients. (As my Resp Con is a Colonal in the army I wonder if that’s how he guessed so quickly what was happening to me).
On the rough end come those of us with severe asthma and autonomic nervous system problems. She hadn’t heard of dysautonomia as hyperadrenergic POTS or IST but she really quickly grasped the ANS dysfunction side of things for me and how that kicks in with VCD.
I’m to start therapy which will be around breathing exercises and voice control. There’s no cure as it’s obviously ANS related but it can be better managed – which I’m all for.
Since the TIA last week I’ve had some problems with being upright and breathing. Needing to lie down more often and the bloomin’ stairs are a killer. I’ve set something off that I can’t get on top of right now. What a shambles.